A short update of the last 2 days visit with Dustin. On Tues, he developed a fever and the worst pain he has ever been in. No amount of medication seem to help although when I was rady to leave around 8pm, he was able to talk a bit and did talk to Nerina on the phone. His day had started out really good, going to the gym and standing on the tilt table at 80 degrees which is fully upright with no dizziness or blood pressure problems. After that he was in a lot of pain, and had developed some type of infection.
Yesterday, I got there and he told me he slept well all night, but thenurse said he was up all night with pain. He was on a bunch of antibiotics, after having been off them for about a week, the first time in a very long time! Between the antibiotics and the pain meds he was confused and hallucinating and sleeping/dreaming - apparently a very weird combinatin for him. He was getting a breathing treatment and thought he was in the bath tub. I would gently try to tell him reality and boy he got mad. What I learned is that you can't mess with someone's reality unless you want to get your head chewed off. He thought I was the crazy old lady! He slept most all day and evening and I went out trying to entertain myself on a budget. I found a thrift store and got a Coldwater Creek outfit, and anne Taylor pants and 2 shirts for 11 bucks!
I came back and he was still sleeping, so talked to a few of the guys outside in the courtyard. It is nice to be able to visit someone else's kid when you know they are not able to be there. I know I would appreciate others visiting and caring.
They are going to do a CAT scan to check about this pain today and their is a consult about some neck injection that Dr. Pope had a presentation on. Dustin has a lot of occipital and neck and shoulder pain and this doctor from the pain management area presented. We will see what he says. Sometimes all of this "medical practice" seems unknown but I just pray that God has His hand in every aspect.
Off to see how he is doing today and will keep you posted.
Love
mary pat
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Please know how very much I am thinking of and praying for you today. What a journey! Praise God He equipped you and continues to do so as needed. There is a beautiful song by Heather Clark entitled 'Good Shepherd'. She sings "In the night, when I call, there will be grace sufficient for me. When it's morning, the sun is shining, you make me lie down in green pastures, lead me beside still waters. It may be night time, and weeping endures for a night. Tho I walk through the valley of the shadow of death I will fear no evil." You can hear it for free and even download it at soakingwithapurpose.com, click on 'free music'. Consider yourselves hugged, loved and prayed for! In His love, Rena
hi dustin and marypat and rick,
we continue to pray for your complete restoration, patience and God's Peace and Love, in Jesus Name!!!
non techno me, i was just shutting down laptop, and the blog page came up, so i decided that Father God wanted me to read it!
it's AWESOME to hear your progress, baby steps add up to giant steps! same as our walkout here in the Lake home in palm coast, FL...just receive what God has for us and i've recently made a victory list so that i can 'see' all that God has done for me, and not be focusing on the yuckie symptoms that remain....it was a blessing to do that, i even had forgotten some of the diseases Father God has healed me from over these past four years!!!!
it sounds exciting that you will be going to orlando and getting a home, yay God!!!! dustin, i know how difficult walking out stuff is, and i want to say i'm very proud of you, that i have seen moments of despair in myself, and i have to change that thinking quickly!!! take every thought captive!!!! our thoughts are soooooooooo important, the enemy would have us get that snowball effect in our minds, and that is YUCK! of course, i'm not totally there yet, but starting to think on things that are lovely and of good report, wow, we have had peace in our home for 10 days or so now, another miracle of our Awesome God!!
just know that we love you and that TRUSTING GOD is our only choice, for you, for me and for our marriage of 29 years!!! whew, sometimes, it's like, God, help me, where are YOU??? TRUST IN HIM, FOR HE WILL NEVER LEAVE YOU OR FORSAKE YOU!!!!
everything i tried without God, it never worked, and HE is Faithful to carry out His Word, i ask Him to change my heart, as even that i cannot do on my own..
we love you and your parents and know that PAPA GOD holds you in His Right Hand, i hold on to that, when really down or stuck in bed for days.......
may God continue to bless you with His LOVE, PEACE and HEALING; receive His Blessings, He has so much planned for your life, and i speak LIFE to you and JOY, thankYOU, Father, Thank YOU, Jesus.
love, dan and barb in palm coast
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