A quick blog. Rick and I went out to Walmart and it was a disaster. There were outrageously long lines with people's carts packed to the max so much of day was spent in line or on bus. It was however a good day to be out as Dustin as not been a lot of fun to be around. Not sure if like a kid he has learned to control and manipulate to get his way or a part of brain injury. It has made it tough today to recognize the fine line between compassion and tough love. Not sure who is winning the battle today but there is always hope for tomorrow.
The good news is that he was off the vent for about 20 min and did great! The whole time he is saying he can't breath, mouthing off and breathing well all at the same time. That will have to be the highlight of the day. They don't want to push it too hard in getting off the vent as it apparently is very hard work and they don't want his left lung to collapse again. He continues to also have a lot of lung secretions which can always be an opportunity for infection. but we pray against those right now.
The other thing that is somewhat tough for me right now is understanding that as I know he will make great strides he still has the issue of the scoliosis pushing against the lung area. Right now I am trying to keep my head above water so I can support Dustin. Rick is here and that also takes getting used to to come out of my self preservation mode that happens when I am on my own. He was discerning enough to recognize it and get right back out here. I had made a lot of progress in this area but the enemy didn't give me any slack in trying to get it back in full force. So to the whole world reading this blog, the enemy is on notice and loses.
Sorry that I don't have a more positive and uplifting post but they will be back!! I chose to be real and not write some fantasy story.
I continue to remind myself to "count it all joy when you fall into various trials (James 1). Walking home with praise music each day renews my strength and allows me to press forward. If you know your bible you will know that Paul and Silas sang there way out of a dark and dreary basement prison. Singing in sunny Albuquerque isn't so bad.
Please continue to pray us through this battle. There is a victory in every battle and I am claiming it as mine through the power of prayer and unwavering faith.
love to all
mary pat
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2 comments:
I love you real, Mary Pat- coz we do have emotions- God didn't make us robots, right?- and it's okay to have a tough day. You are in a tough battle--but you will get through it. It's a pleasure to get surround you with prayers and love in the heavenlies. Miss you SO MUCH!!! --Helena
In prisoner's chains, with bleeding stripes, Paul and Silas prayed that night. And in their pain, began to sing. Their chains were loosed and they were FREE!
These are the words I recalled from the song sung by Selah. I pray our Heavenly Father loose the chains so that you, Rick and Dustin may be FREE!
We love you all. We pray for God to be your strength in this time of battle. We were just informed of your mom and Dustin's move to Georgia. Praise God for His provision and peace.
Much Love, Audra and Jim
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